Lidande, skam och stigma. Att leva med borderline personlighetssyndrom- ett interaktionistiskt perspektiv

Sammanfattning

This qualitative study aimed to explore the experiences of people with borderline personality disorder (also known as emotionally unstable personality disorder). The main focus was to understand how the disorder affects their personal and work relationships, as well as their interactions with healthcare services, especially about processes of stigma and shame. I conducted semi-structured interviews with seven individuals diagnosed with borderline. Their narratives were analyzed using a thematic analysis approach informed by Katie Erikson’s theory of suffering, Thomas Scheff’s theory of social bonds and shame, and Erving Goffman’s theory of stigma. The participants talked about their experiences living with borderline, the effects on their relationships, and their interactions with healthcare and society. My findings show that the participants with borderline experienced shame, which was made worse by societal and healthcare stigmas. They reported having trouble maintaining stable relationships because of emotional instability and fear of abandonment. Many participants felt misunderstood and judged by healthcare providers, sometimes making them unwilling to seek help. However, there were also positive experiences where the participants felt seen and understood. Positive interactions with therapists and supportive relationships with friends and family were crucial for managing their everyday lives. The participants often felt ambivalent about disclosing their condition in private and work relationships. They wanted to be understood but feared being bullied, which many had experienced. Negative experiences with healthcare professionals, like being labeled as manipulative, increased their feelings of shame, worthlessness, and being abnormal. This study highlighted the importance of understanding the social and interactional dimensions and impacts of borderline personality disorder. It showed the need for more knowledge and awareness among healthcare professionals to reduce stigma and improve care quality. The study helps understand both social and emotional consequences of living with borderline and shows the importance of social interactions and compassionate care.