Anhörigvårdares erfarenhet av att vårda en närstående med demenssjukdom : En allmän litteraturöversikt

Sammanfattning

Background: Dementia disease affects both the affected individual and relatives who often assume responsibility for care and support. This responsibility can involve significant strain and affects the relatives’ health and life situation, making their experiences important to highlight. Aim: The aim was to create an overview of relatives’ experiences of caring for a loved one with dementia disease. Method: A general literature review was conducted based on a total of ten articles, of which five were qualitative, two quantitative, and three mixed-methods. Results: The results showed three prominent themes: family caregivers’ experiences of psychological burden, family caregivers’ experiences of support, and family caregivers’ experiences of information. Conclusion: Family caregivers of people with dementia experienced burdens related to caregiving, especially when responsibility was unevenly distributed or support and information were limited. Access to adequate support, clear information, and opportunities for planning and recovery facilitate the caregiving role and reduce stress. Practical support and information are important for managing caregiving in a structured way.